Category: Blog

Caregivers and The Internet: A Force to be Considered

e-patients.net has a great summary of a study done by Pew Internet/California Healthcare Foundation Family Caregivers Online last year. 30% of US adults are currently caring for a loved one. That number will increase due to aging population and changes in health insurance coverage. These caregivers seek out healthcare knowledge and information 20% greater than other users (18% vs. 38%). And caregivers know how to network.

Take a look at the e-patient link and the chart on what caregivers looked for online. If you buy the idea that adults will only learn if they are seeking the solutions to problems they have we can easily see what the problems are. But I am not sure we know the quality of the information they are gathering and how they are using it. A study whose time has come? We need to know more about this group and how to meet their knowledge needs. 

Jumping the Shark in Healthcare Web Sites

Talk about jumping on the healthcare bandwagon and the shark.  I present to you healthcare-sites. This is a place to go to have a healthcare website build for you. Oy

Take a look at the Psychiatrist site vs. Vet site. Your state of mental health and the fleas your dog has are indistinguishable. ‘Doctor my fleas are making me crazy’

7 Count Them 7 Tips to Evaluate Healthcare Websites

This is from NBCLatino. I think it speaks to the expansion of healthcare knowledge across many different and important populations.  A Pew Hispanic Center report shows 83% of US Latinos obtains some information about health from television, radio, newspaper, magazines or the internet.  And it skews toward younger and college age Latinos. Which means the future of healthcare may be a bit brighter.

The article linked above offers seven great tips that we should all be considering when we look for health information as well as valuable links. I wonder how well this article reaches was the reach in fact beyond a few page views?  Strikes me that this is the type of knowledge we can all benefit fro. Here is an example:

You must heed caution when reading blogs as they can be the breeding ground for rumors and misinformation.  At the same time, blogs can also serve as online emotional support and validation, yet always look for multiple perspectives and never trust just one site.

These 7 tips are excellent. Take a look. 

We Got Technology but It’s Useless Without a Strategy

One of my favorite bloggers and marketing brains is Greg of Digital Tonto. He wrote a piece back in June titled ‘The Difference between Strategy and Innovation‘. Let me take a moment to present his premise, what it means to patient knowledge, and show an example. 

Strategy and innovation are different, very different. Greg states it clearly “Without strategy you have no direction, without innovation you lose relevance” We rarely speak about strategy when we discuss social media because we just accept social media is the cat’s meow. It will solve problems since all we have to do is deploy it. NOT! A clear and concise strategy needs to be part and parcel of social media in healthcare in order for it to have a maximum effect.

Greg describes a strategy as “a coherent and substantiate logic for making one set of choices rather than another”. As your mom told you “Make good choices.”  A strategy is used to leverage strength against a weakness, meet a need, or solve a problem. We speak volumes about needs and weaknesses in healthcare. We easily see the issues. But we rarely talk about a strategy and its execution when we speak about social media.

Innovation (i.e. Twitter, Facebook, G+, Instagram) is about possibilities and moving those possibilities forward by combining the old with the new. Innovation is iterative. It is an additive process improving upon existing tools/ideas to create new and better.

The single largest issue we face with the innovation of social media is that none of us are managing it, nor did we create, nor do we have the ability to change it. Social media is a tool owned by others. But it can be used to solve a myriad of problems. Social media innovation exists as a tool for any of us to use. Like most tools it can achieve specific goals, a hammer can drive a nail, a drill can make holes, drive screws, etc. Each cannot do the others job well. With a hammer or a drill we know when to use it where; in effect we are applying a strategy to achieve a goal. How can we make strategic choices using social media in healthcare?

Just to be clear social media does not solving a single problem but in point of fact it solves any number of problems. What it can do is only limited by our imagination. We have a tool that works no matter how you use it or where. It exists within the broad category of the on the world wide web. It has a life of its own. And everyone/anyone can use it. But what’s missing is the fact when social media is applied as a tool to execute a specific strategy to achieve an objective it works better. It becomes more robust. It is measurable back to the objective. Even when we have the right tool it can be disappointing. Using a hammer to drive nails randomly and not building a doghouse is rather stupid. Using a hammer to build a doghouse makes for one happy dog. 

A practical application would be to expand and improve patient healthcare knowledge?

Written as an objective:

  • Increase the number of new patients who are seeking to solve healthcare problems
  • Improve the quality of knowledge patients find and improve their ability to apply it to their care

The strategies would be:

  • Convince patients the importance of validated evidence based healthcare knowledge will improve their healthcare.
  • Teach patients how to find, appraise, and apply new knowledge to their own care.

The program: 

Develop a curriculum working with a team of social media healthcare activists that would cover the following learning points. 

  •      Identify the healthcare issue needing a solution
  •      How to search the internet: Process, tips, and tricks
  •      What are some trusted sites, what aren’t?
  •      How appraise if a site should be trusted
  •      Social media: Rules of the road, how to make it work, being a good citizen, and security
  •      What is evidence based medicine
  •      What to do with your new knowledge

Identify local libraries and ask them to use the curriculum to teach members or whoever. Offer members of various social media groups to go into the library to teach. 

Once the course is completed those attending opt in to participate in the following

  •      Twitter hash tag specific to that library 
  •      FB page
  •      G+ page

The social media tools are used here are part of the strategy. They work to reinforce learning that has taken place in the live library event. Learners uptake knowledge and information at one time but to truly integrate that knowledge into actions they need to reflect and consider how what they learned can be used within their own healthcare framework and experiences. That is done through questions, recommendations from other participants, new information, how others are using new knowledge, etc. What is occurring is that the one time learning activity is not becoming and ongoing learning/participation/social moment.

Bottom line social media is not a strategy and a tactic. It is not a floor wax and desert topping. It is a tactic that requires a strategy to make it work.

Accelerating The Uptake of Healthcare Knowledge or How to Make a Jr. Mint a Wader

It seems everyone and every company is engaging in healthcare and healthcare technology. Twitter has 100s of healthcare chats each month. Microsoft, Verizon, GE, and many other companies are carving out a position in healthcare. Just consider all the healthcare blogs you visit and multiply that by 20.  And we know that greater than 60% of adults who are online seek health information. Healthcare Professionals (HCP’s) are using social media and apps to share knowledge with colleagues. This is huge and is proving productive, positive, and important for healthcare (HC). It bodes well for bending the healthcare cost curve and improving patient care because greater numbers of people want to improve THEIR healthcare. This is a movement of HC self-awareness based on adult learning theory.

So we have this sea change occurring but who are the beneficiaries? Are the changes truly driving better patient care and outcomes? How can we accelerate knowledge acquisition by consumers and patients? How can we better engage HCP to step into the knowledge business with their patients? How do we lessen the lag time from ‘I need to learn about my health’ to ‘I’ve made changes that are giving me benefits’? Finally how do we get more people involved at a more productive level? I want to examine the latter two questions today and present an idea.

First, let’s identify and characterize those who are participating in healthcare knowledge seeking by their participation.

We have the Savvy’s who are the ones we see in chats, on blogs, participating on portals, tweeting, and posting like crazy. They are highly functional in the technology and healthcare knowledge. Most are healthcare professionals or damn close. This group is most active and the most focused on healthcare. They primarily speak to each other.

Next are the Waders. Those are the ones who are increasing their involvement. They may be lurkers on chats or readers of blogs. They are the ones printing reams of papers from WebMD or Medline and joining patient groups. They are positioned to move to Savvy’s but need a boost in confidence. Remember their reference point in all of this is watching the Savvy’s. The Savvy’s set the tone and embrace who enters Savvy Land. A hug from a Savvy is worth seven Like’s on Facebook.

The next group is what I call the Jr. Mints. They are newly minted seekers of HC knowledge and information. They are driven by problems they want to solve regarding their HC or HC of a loved one. They are spending hours searching and collecting HC information and trying to figure how to use it. I would say for the Jr. Mints it’s a hit and miss cycle of finding and capturing information. Much of what they gather early on is useless or just plain wrong. And to make matters worse they may not know it. Plus they may compromise their security online.

Finally there are the Befuddled who want to engage but are lost and not sure where to begin.

Let’s assume that this is a normal distribution with the majority of participants divided between the Waders and the Jr.Mints. The single most important outcome I would like to see is moving each group to the left, a Wader becomes a Savvy a Jr. Mint becomes a Wader and the Befuddled becomes a Jr. Mint. 

Right now that is occurring slowly and painfully. I would present to you that we the Savvy’s can easily and simply change this distribution. Move more learners left on the curve and not surrender to natural selection, which is time consuming, and in some cases counterproductive. 

In my humble opinion a group of Savvy’s should create a learning curriculum designed to help consumers/patients/caregivers navigate online resources better, find information specific to the healthcare problems they want to solve as well as specific to their educational need. My vision for this curriculum would be to first help the learner identify what their needs and goals are by having them self-identify those issues. And rate how confident they are in using online resources? And finally what are the goals they want to achieve with improved online skills?

The next part would be a review of how to do a search, what words to use, what the results mean, and how to improve and customize a search specific to healthcare. There are many secrets and tricks to performing a good search and those can be taught.

Helping learners identify trusted sites and what makes a site not trustworthy is a key part of this curriculum. It is critical that learners know how to critically appraise information based on the site and what they do. Part of this learning exercise should be a brief discussion of evidence-based knowledge and how that impacts healthcare.

Support groups, how to find them and how to function within one is another learning module. Critical in this part of the curriculum is identifying which groups are valid and which ones are not. It should also be discussed here how to be a good citizen of a support community, what are the generally accepted rules of the road and how to protect your personal information. Specific discussions should be made about Twitter, Facebook, Google+, etc. as well as how to leave comments and post questions on blogs and discussion groups.

Finally the course should be closed with a discussion of what do with your newfound knowledge. How can what you learn be added to your daily health routine? How to have a discussion with your HCP about what you’ve learned? How to track your progress and what are the markers that make the most sense when monitoring change.

Okay this is where this type of idea ends, it is laid it out roughly, provides some insight, and it sits there like latkes on a plate at the Carnegie Deli. Perhaps we take it step further. Make it an action item. What if a group of Savvy’s from say #hcsm, Patients Like Me or other sites and chats that attract leaders in social media and medicine decided to work together to create a curriculum. This group would work and develop a curriculum focused on the majority of online learners seeking to solve healthcare problems. The goal of the curriculum should be simple, easy to teach, with valuable information, and practical tips.  

Once this curriculum is completed a very large group of from these sites should take the opportunity to email each and every community, city, community college, university library, and church to offer it for teaching. At the same time if there are any of members from these groups (#hcsm, Patients Like Me, etc.) who are local to these libraries they should offer to teach this course. Just imagine a monthly course taught at the local library “How to Use the Internet to Find Health Information’ Or something more snappy.

This is a grass roots educational process that can do so much more to drive the online trend in healthcare. And it will improve patient outcomes. Perhaps we not just use our knowledge to impress but use it to produce valuable and measurable outcomes. 

Shared Decision Making, Social Media, Adult Learning, Palliative Care, and Hospice a Marriage Made In Heaven

January 3, 2013 Emily Oshima Lee, M.A. and Exekiel J. Emanuel, M.D. Ph.D published a perspective article in the NEJM on “Shared Decision Making to Improve Care and Reduce Costs” Here is the link.

The authors examined the current state of shared decision making (SDM) and how the Affordable Care Act (ACA) positions and expands its benefits. 

Shared decision making (SDM) ensures that medical care aligns with patient’s preferences and values. SDM applies decision aids to inform both patients and family of various treatment outcomes which in turn improves patient knowledge, minimizes anxiety, improves outcomes while helping to manage cost. It is a win win for patient, HCP, and institution. 

But sadly SDM is under used. The authors point out a study of over 1,000 office visits with more than 3,500 medical decisions showed less than 10% of the decisions met the minimum standard for SDM. Another study showed that only 41% of Medicare patients thought their treatment reflected their preference for palliative care over more aggressive treatment. 

Section 3506 in the ACA (found here) offers funding for consensus-based standards and would certify patient decision aids. Health care providers (HCP) would be eligible for grants in this area to test SDM models and approaches that show savings, improved quality of care, etc. 

The authors point to data that demonstrates SDM reduces cost shown by the fact that nearly 20% of patients who participate in SDM choose less invasive surgical options and the conservative treatment than patients who do not use decision aids. Using SDM for just 11 procedures could yield greater than $9 billion in savings across the nation.

It is interesting that the International Patient Decision Aid Standards Collaboration has evidence-based guideline for certification that includes questions in order to aid patient to gain insight on their values and those values that affect their decisions. All of this includes up-to-date data in simple plain language including side effects and complications. 

I would recommend you read the entire piece. It is short but filled with data, information, knowledge, and recommendations. 

For me SDM is part and parcel of adult learning and social media (SM). I am in no way questioning how SDM has worked, is working, and will work. Nor am I second guessing the data. In my view SDM integrates SM and adult learning to potentiate its benefits. 

The primary principle of adult learning tells us adults will learn when they are seeking solutions to problems they want to solve. Patients facing complicated and confusing treatments are seeking solutions to serious problems. SDM steps into to help solve the problem using aids, questionnaires, and electronic media. And by all studies is successful in achieving outcomes. SDM works and is in fact helping patients solve problems while at the same time solving problems for the HCP. There is nothing to change but, can we add a little something something to improve an already good idea?

Perhaps if prior to the first SDM discussion a short inventory is performed to determine what problems the patient wants to solve, what solutions do they know, what do they think about what they know, and based on that what would they do. This exercise is designed to improve the HCP knowledge of the patient prior to the SDM discussion and aids in focusing the patient on treatment decisions. It also aids in improving the decisions. For the HCP this should be considers a needs assessment for a specific patient on a specific topic. What is determined here is information that can be used to improve SDM. 

Palliative care is an ongoing decision making exercise. In a previous post (here) I examined the role of the palliative care physician and hospice care to improve patient care. SDM improves this process and fits so well with the entire continuum of palliative care through to hospice. SDM should be part of all cancer care and should be especially valuable with those patients facing a terminal outcome. SDM is a perfect tool in palliative care but would benefit from doing the type of needs assessment mentioned above and ongoing measurement of change in patient attitude and problems. The trajectory of the disease is one that requires continual learning and discussion. 

Finally, social media can aid this entire process through connecting of patients with each other and with their HCP. These communities of sharing and exchanging knowledge and information focused on a medical need can underpin and become the foundation for understanding those problems the patient wants to solve as well as the the HCP has regarding patients. Social media becomes part of SDM  strategy as a tactic to engage more patients with the process of decision making at a more robust level. 

SM is a tool a tactic whose application is critical to achieving goals through a strategy. SDM offers a very clear set of goals and path to achieve better patient outcomes. SM can be integrated into SDM to improve the process across the board.

Creating A Teachable Moment for Patients In Palliative Care and EOL

Wow is all I can say to a study published in AMA Internal Medicine titled “Early Palliative Care in Advanced Lung Cancer” by Yoong, Park, Greer, Jackson, et al. You can find the abstract here. (Sorry but it’s behind a pay wall.) This article should be free. The data and the recommendations it presents is a crucial component in moving more patients toward a better understanding of palliative care. Limiting distribution to only healthcare professionals (HPC) limits the number of patients and their families from understanding its value and benefit.

This study extends the work of Jennifer S. Temel, MD whose article “Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer” in the August 10, 2010 NEJM offered a very clear picture of how ” early palliative care led to significant improvements in both quality of life and mood.”   Yoong et.al stated objectives were: 1. Identify key elements of early palliative care (PC) 2. Explore the timing of key elements, and 3. Compare the content of the PC physician (PCP) and oncologic visit. They were looking for the important elements of the clinical visit with the PCP that improved outcomes. This study found that early PCP visits focused on symptom management, strengthening coping, and prognostic awareness. While later and more crucial visits have a distinct set of features for PCP involvement and enables to oncologist to focus on cancer treatment and management.

My enthusiasm about this article and its data is centered on the fact that communications, relationships, and rapport were early elements established between PCP and patient. These elements I believe drove the results. Communications, relationships, and rapport are the cornerstones of learning and reflection. Learning and reflection are critical to changing behavior. In addition communications, relationships, and rapport establish a baseline for the more difficult discussions such as end of life (EOL), resuscitation preference, hospice, and change in treatment.

The authors noted that the PCP visits centered on psychosocial aspects of worsening disease and how that effects both patient and family while the oncologist focused more on the disease, its treatment, and management. The authors further noted that they observed the content of early to later PCP visits changed to match the disease trajectory and did not follow a checklist. This seems to match the reality that guidelines in generally are not applied to all patients. And I see it as pointing to a path in managing palliative care specific to patient needs. We all face death and dying differently not one guideline will serve all.

One data set that the authors note is that the PC clinicians focused on establishing a relationship, which leads to identifying needs and preferences for information (knowledge transfer) early. Later in the disease trajectory when treatment was failing and the disease progressing and discussion of EOL was initiated that relationship was drawn upon. Further the authors noted there was not a presumed discussion of EOL care or hospice when the PCP was brought into the clinical picture. It does not support the argument that the PCP early on will bring EOL and hospice up.

Early visits to the PCP, patients and family and the establishment of a relationship drives continuity of care and greater familiarity with the issues and needs of patient and family on both sides. This improves the quality and reflection surrounding later and more complex disease issues such as change in treatment, EOL, and hospice.

This study is within my area of interest palliation, hospice, caregiving, and adult learning. This study presents a place and time where the application of adult learning will drive understanding and knowledge transfer. With the reality of the patient status and the knowledge the PCP has there exists a ready-made value exchange; patients are seeking solutions to problems and the PCP can directly address that. But to be the most effective the PCP needs to understand what are the patient and family gaps in knowledge. What can be done to improve that relationship based on knowledge transfer, strengthen it, make it work better to produce more valuable outcomes?

First, patients as all adults will learn only when they are seeking solutions to problems they want to solve. Patients who are entering palliative care are facing the most difficult problems in life but many may be unable to characterize or articulate those problems. What can be done to aid them in such a way that they can better and more quickly identify problems/needs to the PCP or oncologist? In addition what can be done to aid the PCP or oncologist to improve his/her knowledge in order to maximize the benefit of communications and rapport to create a true value exchange between patient and physician? The authors are looking to at an additional study to identify ‘salient elements of clinical encounters and nonverbal communication that occurs between patient and PCP physician. If we understand the problems these patients are seeking to solve earlier and more clearly we can better manage them and match them to the trajectory of the disease. We may in fact be able to circumvent the need to monitor nonverbal communications, as a tool to ferret out knowledge about patient needs.

Creating a simple and short inventory that the patient and the caregivers complete independently at the first visit would serve the long-term needs of both. And this type of learning is bidirectional were both PCP and patient exchange knowledge that creates reflection on action. I would recommend creating inventory questions using the authors Key Elements of Palliative Care Visits: Relationship and rapport building, Addressing symptoms, Addressing coping, Establishing illness understanding, Discussing cancer treatments, EOL planning, and Engaging family members.

This inventory/needs assessment tool first and foremost identifies problems the patient and family are seeking solutions to. Once it is completed the difference between patient and family would be determined first. These differences are gaps that may or may not need to be closed but clearly need to note and managed because of the dissonance it may create. Answers to the questions by patient will be used to focus discussion and what information to bring to the table and how that information changes behavior and attitude. Keep in mind the completion of this inventory goes a long way to opening learning receptors for the patient as well as the PCP. This ‘needs assessment’ serves as mile markers along the disease trajectory and can be easily updated.

Yoong, Park, Greer, Jackson, et al. have served up proof that palliative care works, that creating rapport and a relationship with palliative patients offers benefits and outcomes that improve quality of life, EOL planning, and the ability of patient and family to face decisions. Improving the ability of the both the patient and the PCP physician to determine needs and problems will go a long way to improve palliative care and EOL decisions. We have all the clinical tools in place what we to do now is create those tools that will allow for higher quality communications and rapport during this darkest of times for any human. 

My View and Experience in Caregiving for the Dying

This was originally posted on a discussion group Coping – Caregiving as life passes me by at Virtual Hospice Ca. It is my view of caring giving as I lived it. 

Pudding, Missy 2012 and everyone: I relate very strongly to this discussion the comments as well as the emotions. My wife died 08/07/2011 after two years in treatment and ultimately three weeks in hospice. 

Being a caregiver is hard physically and emotionally but it was a job I closed my business to apply for. How did my counselor at CancerCare.org put it, Donna put her disease in my hands, she gave it to me to manage and guide her. And this was the strongest most independent woman I have ever met. I was honored to be there for her and to have the chance to move our relations to new deminisions and places. But the truth be told toward the end I would come home from my part time job and just sit on the stoop afraid to go up and see the disease see the pain. But I did it knowing it was my job my love my goal my place in our lives. Today I still miss her so much especially since her birthday is Thursday Feb 14. But I know she had me and that what I did was love at its purest. 

One final thought on hospice. It was not for her alone it was for me. It gave me the chance to surrender the caregiver burden and bask in the final time together. And also it was the place for me to gain comfort and care from an iamazing staff who saw me as a patient as well. At the same time I could apply my knowledge of medicine and healthcare to ensuring she had the care she needed. 

In the end caregiving is a rip tide of emotions that will drag you out to sea but it is a place to plant a flag and take a stand in the name of love. Hospice is that as well.

Medicine is a Service Profession: Leveraging Patient Knowledge

Drs. Kesselheim and Cassel published a perspective piece in the NEJM “Service: An Essential Component of Graduate Medical Education”. Here is the link to the article abstract. Sorry it’s behind the pay wall. L

In my mind the first sentence ties to social media and current patient behavior to healthcare while defining service, “Medicine is a service profession, and commitment to service is a hallmark of humanistic physicians.”

First, the primary point the authors make is that Accreditation Council for Graduate Medical Education (ACGME), (which provides oversight for residency programs) recently completed a survey that asked about evidence of excessive scut work. ACGME framed the question “How often has your clinical education been comprised by excessive service obligations?” Service is completing a chart, dictating a letter and revising, entering orders in a chart, etc. The authors present a cogent argument that the ACGME question asks residents to give personal interpretations of what service is and what education is when in fact service is part and parcel of education. Service is not counter to education.  Service is key to graduate medical education as witnessed by practicing physicians. They know from their years of practice that service is an important teaching tool because it is more likely that ‘scut work’ is solving problems. Solving those problems creates reflection, which is how humans learn. This optimizes resident and physician education with patients.

In a larger context of what is happening with patients today online, and in social media (SM) behavior service has a direct and valuable connection to what it means to be a “humanistic physician”. As we know, more and more patients and caregivers are using the Internet to learn about health, healthcare, and disease specific knowledge. They are becoming advocates for their health for themselves with their healthcare professional (HCP). They are asking questions, making HC decisions, and are pushing the boundaries of HCP and patient interaction. As that old troupe says “Enquiring minds want to know.”

I can’t think of anything that witness’s the power of service and humanistic behavior more then the HCP helping patients become more knowledgeable in managing their own healthcare. Service is not just tending to the clinical issues of a patient but improving the knowledge of those enquiring minds. What can we do to drive the person seeking information about their healthcare and change information into knowledge? Have the HPC provide it and help to make make it part of improved patient behavior.

The HCP cannot be part of this change without accepting and embracing service on what some consider a horrific level, patients asking annoying questions and making requests. So as the authors argue it is key that we don’t paint physician service ‘scut work’ with a wide tar laden brush as non-education but put knowledge and learning into a bidirectional service driving outcomes beyond the dx and script. We know that patients who are involved in their healthcare with their HCP use less physician time and have better outcomes. it is knowledge and sharing this service I call knowledge transfer that drives this change.

The world is changing and HCP needs to change as well and must accept a new vocabulary where service is not scut work but learning. Where the HCP is driving knowledge and not treating it like dollops of sour cream on a baked potato. We are seeing it work on sites such as Howard Luks, MD, his Twitter timeline and more. Howard and thousands of others are taking service and making it learning driven and this is the brave new digital world.

My final thought on this comes back to my general attitude toward healthcare and learning. Just because you create a web site, have a Twitter account, or post on Google + it does not mean you have a set of goals/objectives or a strategy (see this on strategy) to service your patients and improve their knowledge. 

Hospice, Palliative Care and End of Life: Practical Considerations

Those who follow me know my areas of interest. They revolve around a somewhat narrow constellation of topics. One area is adult learning and how it works to drive an educational strategy for patients and HCP (healthcare providers). Another area is social media and how we must think goals and strategy when we want to apply social media to solve a communications, education, marketing, or brand problem. Finally there is the topic of hospice and palliative medicine (HPM) and how important that service is for both patient and caregiver.

One organization that’s also looking at the practical aspects of HPM and EOL is a company I was recently introduced to called Everplans (www.everplans.com). Everplans is a website that addresses, in a new and practical way, the topics of end-of-life and death. (Yup: yet another bummer post by me.) But I must say that after having faced these issues with Donna’s passing 18 months ago, and now in the middle of organizing my own life, this website comes as a welcome resource. Dare I say a bit of light for my darkness?

The site is broken down into categories that apply to all of us: Long Before Death, Eldercare & End-of-Life, After a Death, and Be There for Someone. These buckets are further broken down into key components or steps. These steps are presented simply, clearly with articles and tools, links and explanations, designed to educate and take action. The site is a one-stop resource for anyone interested in planning or learning: those in their 20s and 30s, and those facing the passing of a loved one, post death realities, and what to do and how to do it when a friend or family member dies. I know that for me, I winged the practical considerations at Donna’s death and stumbled along the way—largely I was on autopilot and just pushed through those first few weeks.  Everplans could have served as my checklist and backstop resource. It may have even helped me face the grief of doing this alone.

More than ease of use, this site and the practical steps it presents are part and parcel of my larger reference point: HPM gives so much to the patient and caregiver. HPM is about treating the entire patient clinically, emotionally, and spiritually, while considering the same gestalt of the family. This is especially critical during the end of life and after the death of a loved one. I believe when we bring the services Everplans offers into caregiving, when these issues and tools are part of a family discussion, it opens emotional receptors within us that connect us to our loved one. It not only takes the worry and struggle with these topics off the table; it opens the conversation to include topics we may not want to address. But in addressing these issues openly we free ourselves and our loved ones from struggling with them, especially when they are least able to. Everplans is part of HPM, part of how to better live our lives.

In my opinion HCP and HPM providers should be pointing patients and families to Everplans (or sites similar) in order to guide patients through their options and to ensure critical paperwork is completed and put into the electronic medical records. Eliminating a potentially emotional and difficult task will aid the continuity of care and the well being of the patient, the caregiver, and family.